Variety DC News

Ari’s Story February 13, 2021 7:06 PM

“Ariadne (Ari) has Caudal Regression Syndrome/Sacral Agenesis.  She is missing part of her spine from the L2 vertebrae to her coccyx.  She ambulates using crutches and a wheelchair when she tires.  She is 8 years old and wants to ride a bike but due to her legs knows she can’t ride one like her sister’s.  Since her ambulation is directly correlated to her fitness we are looking for ways to keep her active and healthy.  This is why we have been thinking about a hand cycle but have not been able to afford one for her.”



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